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Living with TD and Schizophrenia

Background on the survey activity


We have summarized the data from the survey so that you can see a breakdown of how TD affects people living with the condition. The survey results have also been presented at a scientific meeting—you can view the data and the poster at the end of this activity, or at any time, by clicking the links at the top of the screen.
Scroll down to see the experiences of people living with schizophrenia and TD.
Keep scrolling to activate animation and see the results.
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61%
had difficulty brushing their teeth
69%
had bathing or showering affected
59%
had difficulty pulling on trousers
51%
had difficulties with a zipper
64%
had difficulty buttoning a shirt
40%
of caregivers said helping with bathing or showering was
a burden
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80%
worried about choking
80%
had trouble chewing
73%
eat slowly to avoid choking
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56%
of caregivers said caring for someone with TD impaired their work
25%
of caregivers said caring for TD patient stopped them from seeking a promotion
28%
of caregivers said caring for TD patient prevented them from showing up to work
11%
of caregivers said caring for TD patient stopped them from applying for a job
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80%
had trouble speaking clearly
76%
felt frustrated by speech difficulties
81%
felt self-conscious because of speech difficulties
87%
limited appearing on video calls because of TD
43%
caregivers communicated with others because of speech difficulties caused by TD
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84%
felt embarrassed because of TD
87%
felt sad or unhappy because of TD
84%
felt anxious or worried because of TD
84%
felt shy or withdrawn because of TD
82%
felt irritable, frustrated, or angry because of TD
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85%
said TD interfered with socializing with friends
83%
TD affected ability to enjoy things
82%
were prevented from leaving the house
81%
had low self-esteem because of TD
55%
of caregivers said TD interfered with socializing with friends
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85%
afraid of being rejected because of TD
85%
TD affected ability to run errands
87%
were unmotivated because of TD
84%
were unable to remember things because of TD
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89%
stared at because of their TD
85%
were asked what is wrong or why they are moving
80%
had jokes at their expense because of TD
77%
were told to stop moving
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57%
skipped doses of an antipsychotic medication or took less than prescribed
36%
stopped taking antipsychotic medication
20%
advised someone else not to take an antipsychotic medication
43%
stopped going to the doctor treating their schizophrenia
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